Carnival of MS Bloggers

The latest contributions are out, you can find them here.

Please go read!

It's Us!! Have Our Autograph!!

To Pee Or Not To Pee...

Well, it's reached that stage.

The stage where I have to stop pretending I don't have M.S. and face the facts.

It's funny, when you have a relatively mild form of MS like I do, with only occasional muscle spasms, a lot of tiredness (as opposed to fatigue which I KNOW is different, because I've experienced it!) and occasional annoying things like facial ticks, it's easy to just lie to yourself that nothing really is wrong with you, that injecting yourself everyday with copaxone is a normal occurence, but then something happens.

I've had problems for the last year or so with my waterworks and bowel movements, (gee don't I sound like a 180 years old or something!) and even now just typing this out makes me writhe with awkwardness inside, but it's a problem I tried to ignore and just get on with, that has got increasingly more frustrating and embarassing. For the past six months I've been seeing MS nurses and Continence nurses, learning neutral terms like "leakage" to discuss issues and situations I've found myself in occasionally that are not horrific, but certainly embarrassing.

The problem is, they've become a bit more frequent than just occasionally, and after months and months of me putting it off I've got an appointment next week at the Continence Clinic to teach myself ISC. This means Intermittent Self-Catheterisation, maybe two or three times a week, and in layman's terms for those of you out there not familiar, involves sticking a tube up areas that have never seen the light of the sun.

As a male, apparently it's alot easier process to go through, but takes a lot longer tubing for obvious reasons. (why can I not hide a male ego based grin when I type that? - I wish! heh! ) I've watched the video, with reactions between mild horror and faint amusement at my Dad's reaction when he merely looked at the diagrams, (I saw him physically recoil and say in a loud voice "oh son, no! no!") and I'm now mentally ready to start learning the process.

Comments made in an understanding way like, "it might hurt the first time, and when you get to the Sphincter muscle before the bladder, pushing it through that might hurt alot and you might pass out" didn't exactly help my enthusiasm for this treatment, but needs must.

I've decided to approach this in a scientific, cold, emotionless manner, much like a boy looking at a small bug under a microscope would. (please don't draw any conclusions from the microscope comment - Ed) Whether this approach will be successful, or whether I will run screaming like a 12 year old girl from the room, remains to be seen.

I guess most guys wouldn't have a problem flopping out their member in front of a female nurse, but I'm a little different that way, it will be a highly embarassing situation and thoughts of a sexual nature will be the last thing on my mind when I attempt to stick a tube up.... actually never mind the description, I feel nauseous just thinking about it!

Needless to say, I'm not looking forward to it, but I know it will be better for me in the long run, and hopefully be a relief in more ways than one. When I first started injecting copaxone, more than two years ago now, it felt very strange and alien, I guess this is just the same. All part of the "fun" and crazy journey of MS.

Well, those of you who do, please say a prayer for me on Wed 26th at approx 9:10 am GMT, I'd appreciate it...

An Extremely Nervous Guy.

Longeth Time No Speakee...

Yes, yes I know.

One thing you should know about me is that Procrastination & Laziness are two of my greatest Gifts, however they are not being used much at the moment!

I'm so blummin' busy!!!

Anna, my new Senior sales has started, and I'm in the midst of training her at the moment, which is interesting, as if you've been at any workplace a long amount of time, you tend to just do things on autopilot until you have to explain them to someone! :p

The last two weeks were fantastic, I spent them with the love of my life, and we got quite alot of wedding stuff organised for August. (the big day approaches...)

Anyway, I have to be off now as end of lunchtime approaches and I have lot's of... well... Manager-ish type stuff to do...

Bye!!

MS Awareness, Blogging Friends, and a little Link Love...

See Below.... My Blogging Friends!!

MS Awareness, Blogging Friends, and a little Link Love
There are at least 137 MS Bloggers out there actively discussing whatever suits their fancy. Below you will find many of these suspects....wait... I mean lovely blogger friends who happen to have multiple sclerosis.Remember how I mentioned a group project was in the works? Well here it is. As the founder of the Carnival of MS Bloggers, I'd like your help in spreading the word, and in doing so we will strengthen the bonds of our own little Multiple Sclerosis Blogging Web (and share some linkie love with each other). If you are not an MS Blogger, but are a regular reader here, please feel free to help spread the word too.
Here's what you do:
Copy the entirety of this post
Create a new post and paste this content
Visit 3 of the blogs listed below which you were unfamiliar
Leave a comment on their blog encouraging them to participate
Please add Brass and Ivory to your sidebar, if it's not alreadyNew editions of the Carnival of MS Bloggers will be presented bi-weekly at Brass and Ivory. Previous editions will be are archived here and the button below has been revised to include the new link. Please update your sidebar.
Names of the Blogs - Name of Blogger (if known)
and # of posts in 2008 (as of 3/5)
Newly brought to my attention!!!Persnickety Quilts (Dianne)Scraps and Threadtales (YankeeQuilter)Living Life at LeeHaven (Karen)Barbara's TchatzkahsMiddle Age Mania (Tricia)Curmudgeonette (Pamela)Tokyo Girl Down UnderMima's DoingsMark and MSHome Sweet Home (Jennifer)9 Brand New MS Bloggers joined the blogosphere in 2008!!New! Carole's MS Blog (Carole) 49New! Great Mastications (Orla) 37New! Movin' On with MS (Sammie) 26New! Me, Myself and MS (Emma) 10New! Being Ammey 8New! Blogbuster (Daniel) 6New! Etsy Crest (Shelby) 6New! Serina's Blog 5New! I'm Beating MS (Michael) 2Most Prolific MS Blogger - so far in 2008!!Jim's Deep Thoughts (Jim) 231Top 10 Rather Prolific MS Bloggers - so far in 2008!!A Stellarlife (Diane) 109Merely Me's Multiple Synchronicities (& Sclerosis) 90Friday's Child 70My Journey - Living Well with MS (Diana) 69Sunshine and Moonlight (Kim) 65The MonSter Ate My Branes! (Natalie) 65Queen Mediocretia of Suburbia 60Brass and Ivory (Lisa) 56Brain Cheese (Linda) 52Maybe I'm Just Lazy (Julie) 5128 Moderately Prolific MS Bloggers - so far in 2008!!Maggsbunny (Maggie) 48Living with Multiple Sclerosis (TC) 47MS My Way (Callie) 43Bugs, Bikes, Brains (Shauna) 39Dancing with MS (Lazscott) 37Trying to Catch My Breath 37A Florida Journal (SwampAngel) 35Now We Are Six (Tish) 33Reality Check (Michael) 32Access Denied (Herrad) 31Multiple Sclerosis Blog (Charles of MSBpodcast.com) 30MS Activist (NMSS) 29Self-injecting Chinese Hamsters since 2007 27Shirl's the Girl (Shirley) 27Disabled Not Dead (Anne) 26Life with MS (Trevis) 26Living with MS (Blinders Off) 25White Lightning Axiom - Redux (mdm) 25Stevers! 23Word Salads (Have Myelin?) 23Danieldoo (Vivian) 22Caregivingly Yours (Patrick) 20Deo Volente (Lisa N) 20Down the MS Path (Vicki) 19Do You Have That in My Size? (Denise) 17Jenn's Nook (Jenn) 17Fingolimod and Me (Jeri) 16Human Life Matters (Mark) 1651 Mildly Prolific MS Bloggers - so far in 2008!!A Life of Learning with MS 15Behind Blue Eyes (Zee) 15Katy and Mike's Adventure (Katy) 15Living Life as a Snowflake (Sharon) 15Mandatory Rest Period (Kim) 15MS Maze (Mandy) 15My Journey with MS (Christina) 15The Multiple Sclerosis Companion (Pat) 15'Tis Herself (Kell) 15A Short in the Cord (Joan) 14Blindbeard's MS Blog 14Bubbie's Blog (Cathy) 14One Crazy Chick (Chris) 14Pat's Pond (Pat) 14Rants and Musings (Cutter) 14G and K's Mom 13MS Toolkit 13Newly Diagnosed with MS (Andrea) 13One Life (Stephen) 13MS Not Just a Diary (Dave) 12Rayne's World (Jayme) 12Chaos Personified 11My MS Journal (Jaime) 11Purely Patsy (14 yr old Patsy) 11Victoria Plum - Technician! (Victoria) 1126 Less Prolific MS Bloggers - so far in 2008!! Broken Clay (Katja) 10Mark Pickup (Mark) 10My Chain Driven Ride through Life in Alaska (Michelle) 10Deborah Does Navel-Gazing (Deb) 9Funky Mango's Musings 9Inside the Mind of a Squirrel 9Living Well with MS (Michon) 9No Time for MS (Courtney) 9Sorting It All Out (Michael) 9Travels With Lucy (Virginia) 9MS Caregivers (Prudence) 8Can You Hear Me Now? (Donna) 7Irreverence is Justified 7Multiple Sclerosis Notes 7My Tysabri Diary (Lauren) 7Chris Has MS (Chris) 6Diary of MS X (7 Divas) 5Electrical Disturbance (Stephan) 5Know Multiple Sclerosis 5MS in the OC (Frank) 5MS News and Notes (Deb) 5MS Recovery Diet Blog (Ann) 5The Endomorph (Ruth) 5The Jaws of My Life (Jaws) 5Time to Deal with MS (Homer) 5YodaMamma MS & More 538 Barely Prolific MS Bloggers - so far in 2008!!Some of these folks have multiple blogs or co-blog and are loved none-the-less!! Let's help spread the love and let them know that WE know they are appreciated.Carolyne's MS Odyssey (Carolyne) 4Defeating Illness (Chris) 4Intent, Context, Perception (Chris) 4Libbi's MS Journey (Libbi) 4MS Recovery Diet Blog (Judi) 4My Autoimmune Life 4The Life & Times of Sancho Knotwise (JM) 4The Zen Pretzel Trick (Zen Angel) 4When it's Raining... (Keeley) 4Kebenaran - The Truth 3Montana Homecoming (Sister Jane) 3Ms Quill 3Reality Chick (Keli) 3Catch My Disease (Lisle) 2Clods and Pebbles 2Dissonance 2Georgia MS Advocates 2Lazy Dog Public House 2Looking Forward with MS (Pamela) 2Surviving MS in Alaska (Michelle) 2These Pretzels Are Making Me Thirsty (Trrish) 2Troy's Multiple Sclerosis Experience 2You Me and MS (Judi) 2Camille's MSadventures 1Comment Column (Virginia) 1Erik's MS & Lyme Blog 1Hop Bloody Hop (Philip) 1Jenn's Journey with MS (Jenn) 1Living with MS (Cyndee) 1Mismorphic's World of MS 1MS Musings 1MS Real Life Stories & Issues (Kristin) 1Postcards of My Life (Sherry) 1Rebooting Times 1Shoester (Doug) 1The BS of My MS (Heather) 1The Perseverant Pincushion (Trish) 1Tysabri Help (Deej) 1Having too many items from various posters to count: LJ Users with Multiple SclerosisAnd finally - 26 MS Bloggers who have been silent in 2008!! Angst on a Shoestring (Gina)Dandelion Wine (Lynx)Doug's MS Journal (Doug)It's Not All in My Head (Optimist)Just Above the Abyss (Heidi)Life with MS , seeking a cure (Karyl)Managing MS with Tai Chi (Joel)Managing Multiple Sclerosis (Vince)MarciaritaMichele's BlogMike's PlaceMS - My Scene (Virginia)My Complications (Amanda)My Demyelination (Tina)My MS ExperienceObject of My Injection (Michelle)Say It Isn't So (Mouse)Talk Story with KimberlyThe Great NetXperimentTo Be Continued... (Jaime)Truth and Beauty (Baraka)Tryin' to Imagine Bliss (Suzy)What is MS to Me (Dave)Willy's MS RantsWind Among the ReedsHard to categorize:I Have MS (Tim)Huggins' MS Pages (James)MS - A Personal AccountMS Protocols (Jeff)MSB's PodcastMSing AroundMultiple Sclerosis Blog and NewsMultiple Sclerosis SucksOUCH! It's a Disability ThingSquiffy's House of Fun
Thank you for helping to build a stronger MS Community.
Sphere: Related Content • Stumble It!
Posted by LISA EMRICH at 8:00 AM
Labels: Blogging, Carnival of MS Bloggers, Multiple Sclerosis

23 comments:
Taxingwoman said...
Hi! Lisa Thanks for letting me know about thisI will be home tomorrow and will give it my attention. An interesting project !
March 6, 2008 10:54 PM
BRAINCHEESE said...
VERY NICE! You took a great deal of time and energy to provide this post...thank you!Linda D. in Seattle
March 6, 2008 11:53 PM
Lazy Julie Baker said...
Thanks, Lisa. I'm copying your cutting and pasting right now. Blog on, Sista! :-)Lazy Juliehttp://lazyjulie.blogspot.com
March 7, 2008 12:13 AM
Nancy Carroll said...
This post has been removed by a blog administrator.
March 7, 2008 12:30 AM
Diane J Standiford said...
Lisa, I feel bad for the bloggers with few posts---they may be doing the best they can. I will have to add that fact to my blog. I don't want anyone to feel bad if they have not posted as often as others.I commend you for gathering the MS Blog links. That was a lot of work.
March 7, 2008 2:31 AM
Blinders Off said...
Thanks for letting me know Lisa.
March 7, 2008 4:20 AM
SwampAngel65 said...
Hi Lisa,Thanks for letting me in on this great blogging idea. I'll be sure to follow your steps and get things set up tonight when I get home from work. Good job!!!
March 7, 2008 7:14 AM
Merelyme said...
wowee! you have done so much work on this project! this is great...i will definitely go a-visiting soon. this is really nice what you are doing here and will be of great benefit to all.
March 7, 2008 7:24 AM
TickledPink said...
Hi Lisa,Thanks for doing this! I've already found 3 wonderful new MS bloggers I didn't know of before. :-)Great idea...but you are full of those, aren't you!?!~Jeri
March 7, 2008 11:20 AM
Frank said...
Lisa,I just love this blog! I think you've managed to turn it into a true community forum.It will be linked to my MS in the OC blog @ www.msintheoc.blogspot.com.Frank
March 7, 2008 2:11 PM
Orla Hegarty said...
Thanks for putting this together and including me on your list Lisa.I have chosen the road less traveled when it comes to 'treating' MS - and remember - there are no treatments, only 'disease modifying medications' (wtf?). So, I do not take any prescribed medications.I realize that others have chosen different paths and wish all of you well. I started my blog in the hopes of connecting with other blogging MSers who are choosing to 'treat' this condition via a dietary approach. I have yet to connect with someone like that but I have connected with lots of like minded bloggers who treat their health conditions with diet changes. That support alone has been so very wonderful for me.If there are others on 'the road less traveled' for their MS then I'd love to hear from you. Namaste to all.
March 7, 2008 2:40 PM
Christina K. Brown said...
cool!When I get back from my cruise (leaving tomorrow at 4am...)I will do this!
March 7, 2008 3:37 PM
Jim said...
I just got home from work. Its cool. I will catch up tomorrow since I am not doing anything tomorrow. Yippee !!!Thanks for sharing.Hugs, Jim
March 7, 2008 5:08 PM
Miss Trish said...
Thanks so much for this initiative! I'd only posted on my blog once this year before now. This initiative and other recent connections with MS bloggers has made me conscious of doing two things: blogging more often (for which I have a basic remedy to help me get back into a rhythm) and blogging more explicitly and more vulnerably about my journey with MS. Lots of my blog, especially in the early days, is taken up with simple stories and observations about life. As it [the blog] progressed, and as I progressed on my journey with MS, the MS got a mention every now and then. The title is, of course, in direct reference to the fact that I inject Rebif thrice weekly.Keep up the good connections!- Miss Pincushionwww.betweencoffees.com/pincushiondiary
March 8, 2008 9:55 AM
J. Patrick Leer said...
I'm guessing this is an extension of Braincheese's "102 Blogs about MS". Both of you have taken extraordinary time to make such listing available.THANK YOU for listing me as "moderately" prolific. I am always fretting about screen time.Caregivingly Yours,Patrick Leerhttp://caregivinglyyours.com/http://journals.aol.com/daddyleer/CaregivinglyYours/http://caregivinglyyours.blogspot.com/
March 8, 2008 5:15 PM
LISA EMRICH said...
Thank you all so much for participating!! I'm excited about the potential for greater support and connections.
March 8, 2008 7:01 PM
trrish said...
ha! I didn't know anyone was keeping track. I'll get more prolific :-)good work,trrish
March 8, 2008 7:52 PM
Keli said...
Thank you, Lisa for opening up the doors for those of us with MS. Through your site, I have found so many others with this illness . . . we are a brave band of sisters and brothers and it helps to know there are so many of us that understand, commiserate and who can just say, "I've been there. I know what you're saying." So thank you again! You are definitely a shining star!
March 10, 2008 11:17 AM
herrad said...
Hello Lisa,Thanks for leaving a comment about Carnival of MS Bloggers on my blog.Just been copying and pasting and visiting three blogs I had never heard about, but thanks to your brilliant links list they are all there for me to visit.Brilliant!Love,Herrad
March 11, 2008 3:46 PM
Barbara said...
I don't blog just about my disability - I do talk some about invisible illness (MS), pain, fibromyalgia, MS along with a lot of other subjects but I am linking to you!! Great posts on this blog!
March 12, 2008 10:15 PM
Anonymous said...
This post has been removed by the author.
March 14, 2008 12:23 AM
Anonymous said...
On unnecessary assholishness:In light of this fucking bullshit, I am quite honestly considering deleting my entire blog.I really don't need to find pejorative, condescending posts by invasive, Bible-thumping ignorant breeders when I am (for the most part) attempting to mind my own fucking business.Just an FYI.-X.
March 14, 2008 12:25 AM
Yoda Mamma said...
It might be the ol' MS poopy-brain but I have no idea what it is that you want us to do...copy this entire page? And create a new blog? I already have a blog so why would I need to make another one? I am so confused! IF I could just add my existing blog to the list, I'd do that but create a new one is just not something I feel a need to do.If anyone is interested my blog is yodamamma MS & More. If you want to add it to your list, please do.
March 17, 2008 1:24 PM
Post a Comment

Links to this post
MS AWARENESS WEEK: Help Spread The Information!
Lisa Emrich's blog, Brass and Ivory has quietly been an on & off read for me. She writes with clear strength about living with disability, chronic illness, the state of healthcare and the realities of life for people like her & I. To ...
Posted byBarbara atMarch 12, 2008 9:38 PM
Caregiving: MS BLOGGERS / MS Awareness Month
MS BLOGGERS --- March is MS Awareness Month. Lisa, of Blogger journal Brass and Ivory, has assembled an extraordinary project --. MS Awareness, Blogging Friends, and a Little Link of Love. A listing of “at least 137 MS Bloggers out ...
Posted bydaddyleer atMarch 10, 2008 2:00 PM
Join the Movement.....
One stitch at a time is how I'm approaching my knitting these days. As long as I just keep focusing on that one little stitch at a time then things are pretty manageable. It allows me to focus on the moment and the process of knitting ...
Posted byLady Wentworth atMarch 10, 2008 2:43 AM
Linking it forward…Kudos to Lisa Emrich
MS Awareness, Blogging Friends, and a little Link Love. There are at least 137 MS Bloggers out there actively discussing whatever suits their fancy. Below you will find many of these suspects….wait… I mean lovely blogger friends who ...
Posted byaglol atMarch 9, 2008 3:08 PM
In the summer of 2006, I had just purchased some Burt's Bees Hand ...
In the summer of 2006, I had just purchased some Burt's Bees Hand Salve, which I really like. It has a strong odor, but one I find pleasant, and it works well for me. I took it with me on my work trip to Denver in August, ...
Posted byStephan atMarch 8, 2008 10:57 PM
An Interesting Project
My post wouldn't post and now I'm way too tired to start over.Never fails when I forget to save, something goes wrong. Lisa at Brass and Ivory ,has an interesting project going on. Check out the March 7th post ...
Posted byTaxingwoman atMarch 7, 2008 10:42 PM
Testing My Computer Skills...Lisa's "Linky Love Post"...
This post comes from Lisa at Brass & Ivory...she's painstakingly taken the time to put together an extensive MS Blogging list. I do hope I have "done the right thing" here by trying to follow her simple instructions to repeat the post ...
Posted byBRAINCHEESE atMarch 7, 2008 10:27 PM
MS AWARENESS, BLOGGING FRIENDS, AND A LITTLE LINK LOVE
T-Nationn H Top 10 Rather Prolific MS Bloggers - so far in 2008!! A Stellarlife (Diane) 109 Multiple Synchronicities & Sclerosis (Merelyme) 90 Friday’s Child 70 My Journey - Living Well with MS (Diana) 69 Sunshine and Moonlight (Kim) 65 ...
Posted by atMarch 7, 2008 1:14 AM
Here a blog, there a blog, everywhere a blog, blog!
One of my fellow MS bloggers sent me the following message and I thought I would do my part to spread the love: MS Awareness, Blogging Friends, and a little Link Love There are at least 137 MS Bloggers out there actively discussing ...
Posted byLazy Julie Baker atMarch 7, 2008 12:15 AM
MS Awareness, Blogging Friends, and a little Link Love
brought to you from Brass & Ivory… MS Awareness, Blogging Friends, and a little Link Love. There are at least 137 MS Bloggers out there actively discussing whatever suits their fancy. Below you will find many of these suspects….wait… ...
Posted bysclason atMarch 6, 2008 11:40 PM
Create a Link
Newer Post Older Post Home
Subscribe to: Post Comments (Atom)


"Lisa claims to be only a professional musician but I've been in this business for 35 years and I have to say she has a lot to contribute on the issue of health care policy."- Robert Laszewski"Kudos to Lisa Emrich for consistently producing high level analyses of living with disability."- Zagreus Ammon"Some people are brave, some strong, and sometimes they write well, too. You might consider this interesting blogger who posts on the hows and whens of telling other people about not-so-obvious physical problems. I'd say it would take trust to do that, and guts. Check this one out at Brass and Ivory. Excellent, excellent post."- TherapyDoc"I have come to grow very fond of Lisa. She is very passionate about the topics she writes about and is not afraid to voice her opinion. This is one tough lady I am telling you...and Lisa has a kick butt list of all the MS blogs you never knew existed until now. Her site is full of information and support. So do go visit. You will be glad you did."- Merelyme

Almost Famous Me


From Sweet Merelyme


An Award from Jeri


My First Award
Thanks Jim!

A Heart Award




$7000 for 4 months


Health Care Blogs
[+]
Health Care Blogs
A Healthy Blog
BioEthics Forum
California Medicine Man
Consumer-focused Healthcare
Crass Pollination - An ER Blog
Curing Healthcare
DB's Medical Rants
Dinosaur Musings
Disability Blogger
Dr. Hebert's Medical Gumbo
Dr. Val
Dr. Wes
Economic Policy Institute
Every Patient's Advocate
Everyone Needs Therapy
Fixin' Healthcare
Gooz News
Health Affairs Blog
Health Beat Blog
Health Blawg
Health Business Blog
Health Care Blues
Health Care BS
Health Care Law Blog
Health Care Policy and Marketplace Review
Health Care Renewal
Health Populi
Healthcare Economist
Healthy Skepticism
Honest Medicine
Improve Health Care
Insure Blog
Jon Swift
Kaiser Network - Health Policy News
Managed Care Matters
Med Innovation Blog
My Journey With Depression
Notes from Dr.RW
Over My Med Body!
Pharma Fraud
Prescription Project
Respectful Insolence
Retired Doc's Thoughts
Schwitzer Health News
SourceWatch on PhRMA
The Antidote Counterspin
The Blog that Ate Manhattan
The Carlat Psychiatry Blog
The Cheerful Oncologist
The Happy Hospitalist
The Health Care Blog
The Physician Executive
The Politlcal Cat
The Sentinel Effect
WhiteCoat Rants
Workers' Comp Insider
World of DTC Marketing
WSJ Health Blog

toggle(getObject('exp1199233022_link'), 'exp1199233022');
MS Bloggers
[+]
MS Bloggers
A Florida Journal (SwampAngel)
A Life of Learning with MS
A Short in the Cord (Joan)
A Stellar Life (Diane)
Access Denied (Herrad)
Angst on a Shoestring (Gina)
Barbara's Tchatzkahs
Behind Blue Eyes (Zee)
Being Ammey
Blindbeard's MS Blog
Blogbuster (Daniel)
Brain Cheese (Linda)
Brass and Ivory (Lisa)
Broken Clay (Katja)
Bubbie's Blog (Cathy)
Bugs, Bikes, Brains (Shauna)
Camille's MSadventures
Can You Hear Me Now? (Donna)
Caregivingly Yours (Patrick)
Caregivingly Yours (Patrick)
Caregivingly Yours (Patrick)
Carole's MS Blog (Carole)
Catch My Disease (Lisle)
Chaos Personified
Chris Has MS (Chris)
Clods and Pebbles
Comment Column (Virginia)
Curmudgeonette (Pamela)
Dancing with MS (Lazscott)
Dandelion Wine (Lynx)
Danieldoo (Vivian)
Deborah Does Navel-Gazing
Defeating Illness (Chris)
Deo Volente (Lisa N)
Diary of MS X (7 Divas)
Disabled Not Dead (Anne)
Dissonance
Do You Have That in My Size? (Denise)
Down the MS Path (Vicki)
Electrical Disturbance
Erik's MS & Lyme Blog
Etsy Crest (Shelby)
Fingolimod and Me
Friday's Child
Funky Mango's Musings
G and K's Mom
Georgia MS Advocates
Great Mastications (Orla)
Health Central's MS Shareposts
Home Sweet Home (Jennifer)
Hop Bloody Hop (Philip)
Huggins' MS Pages (James)
Human Life Matters (Mark)
I Have MS (Tim)
I'm Beating MS (Michael)
Inside the Mind of a Squirrel
Intent, Context, Perception (Chris)
Irreverence is Justified
It's Not All in My Head (Optimist)
Jenn's Journey with MS (Jenn)
Jenn's Nook (Jenn)
Jim's Deep Thoughts (Jim)
Jooley's Joint (MSWebPals)
Just Above the Abyss (Heidi)
Katy and Mike's Adventure (Katy)
Kebenaran - The Truth
Know Multiple Sclerosis
Lazy Dog Public House
Libbi's MS Journey (Libbi)
Life on Cripple Creek Column
Life with MS (Trevis)
Life with MS, seeking a cure (Karyl)
Living Life as a Snowflake (Sharon)
Living Life at LeeHaven (Karen)
Living Well with MS (Michon)
Living with MS (Blinders Off)
Living with MS (Cyndee)
Living with Multiple Sclerosis (TC)
LJ Users with Multiple Sclerosis
Looking Forward with MS (Pamela)
Maggsbunny
Managing MS with Tai Chi (Joel)
Managing Multiple Sclerosis (Vince)
Mandatory Rest Period (Kim)
Marciarita
Mark and MS (Mark)
Mark Pickup (Mark)
Maybe I'm Just Lazy (Julie)
Me, Myself and MS (Emma)
Merely Me's Multiple Synchronicities (& Sclerosis)
Michele's Blog
Middle Age Mania (Tricia)
Mike's Place
Mima's Doings
Mismorphic's World of MS
Montana Homecoming (Sister Jane)
Movin' On with MS (Sammie)
MS - A Personal Account
MS - My Scene (Virginia)
MS Activist (NMSS)
MS Caregivers
MS in the OC (Frank)
MS Maze (Mandy)
MS Means (Carolyne)
MS Musings
MS My Way (Callie)
MS News and Notes
MS Not Just a Diary (Dave)
MS Pipeline
MS Protocols (Jeff)
Ms Quill
MS Real Life Stories & Issues (Kristin)
MS Recovery Diet Blog (Ann)
MS Recovery Diet Blog (Judi)
MS Silver Lining
MS Toolkit
MSB's Podcast
MSing Around
Multiple Sclerosis Blog
Multiple Sclerosis Blog and News
Multiple Sclerosis Notes
Multiple Sclerosis Sucks
My Autoimmune Life
My Chain Driven Ride through Life in Alaska (Michelle)
My Demyelination (Tina)
My Journey - Living Well with MS (Diana)
My Journey with MS (Christina)
My MS Experience
My MS Journal (Jaime)
My Tysabri Diary (Lauren)
Newly Diagnosed with MS (Andrea)
No Time for MS (Courtney)
Now We Are Six (Tish)
Object of My Injection (Michelle)
One Crazy Chick (Chris)
One Life (Stephen)
OUCH! It's a Disability Thing
OzMS Bloggers
Pat's Pond (Pat)
Persnickety Quilts (Dianne)
Postcards of My Life (Sherry)
Purely Patsy (14 yr old Patsy)
Queen Mediocretia of Suburbia
Rants and Musings (Cutter)
Rayne's World (Jayme)
Reality Check (Michael)
Reality Chick (Keli)
Rebooting Times
Say It Isn't So (Mouse)
Scraps and Threadtales (YankeeQuilter)
Self-injecting Chinese Hamsters since 2007
Serina's Blog
Sharing Our Days (Sean)
Shirl's the Girl (Shirley)
Shoester (Doug)
Sorting It All Out (Michael)
Squiffy's House of Fun
Stevers!
Stu's Views and MS Related News
Sunshine and Moonlight (Kim)
Surviving MS in Alaska (Michelle)
Talk Story with Kimberly
The BS of My MS (Heather)
The Endomorph (Ruth)
The Great NetXperiment
The Jaws of My Life (Jaws)
The Life & Times of Sancho Knotwise (JM)
The MonSter Ate My Branes! (Natalie)
The Multiple Sclerosis Companion (Pat)
The Perseverant Pincushion (Trish)
The Zen Pretzel Trick (Zen Angel)
These Pretzels Are Making Me Thirsty (Trrish)
Time to Deal with MS (Homer)
Tis Herself (Kell)
To Be Continued... (Jaime)
Tokyo Girl Down Under
Travels With Lucy (Virginia)
Troy's Multiple Sclerosis Experience
Truth and Beauty (Baraka)
Tryin' to Imagine Bliss (Suzy)
Trying to Catch My Breath
Tysabri Help (Deej)
Victoria Plum - Technician!
What is MS to Me (Dave)
When it's Raining... (Keeley)
White Lightning Axiom - Redux (mdm)
Willy's MS Rants
Wind Among the Reeds
Word Salads (Have Myelin?)
YodaMamma MS & More
You Me and MS (Judi)

toggle(getObject('exp1199232771_link'), 'exp1199232771');
MS Forums
[+]
MS Forums
MS Forums
Brain Talk Communities
Live Journal MS Support
Me and My MS
MS Central
MS Christian Forum
MS Foundation Forum
MS Log Forum
MS People UK
MS Refugees Forum
MS Speak Forum
MS Support Network
MS World Forum
MSRC Sharing Forum
Neuro Talk Communities
Patients Like Me
Revolution Health
This is MS Forum
We Have MS

toggle(getObject('exp1199237401_link'), 'exp1199237401');
MS Support
[+]
MS Support
National MS Society
MS Society of America
MS Foundation
Atlas of MS (msif)
Face of MS (nmss)
MS World (nmss)
MS Means...
MS Moms
MyMS MyWay
Active MSers
Multiple Sclerosis Sucks
MS Cooling Foundation
MS Mobility Foundation
Brain and Spine Foundation
Job Accommodation Network
MS Crossroads Connections
MS National Therapy Centres (UK)
MS Resource Centre (UK)
Race to Erase MS

toggle(getObject('exp1199465451_link'), 'exp1199465451');
MS Consortiums
[+]
MS Consortiums
Consortium of MS Centers (CMSC)
European MS Platform
International MS Genetics Consortium
International Organization of MS Nurses
MS Coalition
Multiple Sclerosis International Federation
Multiple Sclerosis Trust (UK)
National Institute of Clinical Excellence
National Library of Medicine
Neurology Now Journal
Rehabilitation in MS (RIMS)
Society for Neuroscience
This is MS (News)

toggle(getObject('exp1199237742_link'), 'exp1199237742');
MS Foundations
[+]
MS Foundations
Accelerated Cure Project
Myelin Repair Foundation
NMSS - National Capital Chapter
The Myelin Project
Trish MS Research Foundation (Australia)

toggle(getObject('exp1199232496_link'), 'exp1199232496');
MS News and Articles
[+]
MS News and Articles
Accelerated Cure - In the News
Archives of Neurology (AMA)
Healing Well
Healthology
International Journal of MS Care
Medical News Today
Medical Research Council
MedlinePlus - National Library of Medicine
MS Exchange - CMSC Newsletter
MS Log News
MS News Room
National Health Services Direct
Neurology (AAN)
Neurology - MS Articles
New England Journal of Medicine
NYT Health News
Sage Journals Online
Stu's Views and MS Related News
The Boston Cure News
WebMD Health Center

toggle(getObject('exp1199589257_link'), 'exp1199589257');
MS Research Centers
[+]
MS Research Centers
CenterWatch Clinical Trials
ClinicalTrials.gov
Duke - Human Genetics
Medical Research Council
MS Center at Johns Hopkins
MS Center of Oregon
MS Genetics Group
MS National Research Group
MS Rehab Research and Training Center
MS Research Australia
MS Research Center of NY
MS Research Unit at BGH
North American Research Committe (NARCOMS)
Race to Erase MS
Sylvia Lawry Centre for MS Research

toggle(getObject('exp1199465306_link'), 'exp1199465306');
Rx Assistance
[+]
Financial Assistance
NeedyMeds.Com (highly recommended)
Benefits CheckUp
Chronic Disease Fund
Co-Pay Relief Fund
Free Meds and Solutions
HealthWell Foundation
Kelly Packowski MS Foundation
Modest Needs.Org
MS Helping Hands - (WA State)
MS Research & Relief Fund (UK)
MSAA - Cooling Equipment
MSAA - MRI Diagnostic Program
NORD Co-Pay Assistance Program
Patient Access Network Foundation
Patient Advocate Foundation
Patient Services Incorporated
PhRMA's PPA (not recommended)
Prescription Assistance Info
Rx Outreach (generics only)
Sweet Relief Musician's Fund

toggle(getObject('exp1199237842_link'), 'exp1199237842');
Health Coverage Information
[+]
Health Coverage Information
American Medical Student Association
American Patients for Universal Health Care
Americans for Health Care
Ave Cassandra
CA - Guaranteed Health Care
CA - Health Care for All
CA - One Care Now
California HealthCare Foundation
California Nurses Association
Center for Economic and Policy Research
CO - Single Payer UHC
Coalition Supporting Equity for our Nation's Self-Employed
Colorado Consumer Health Initiative
Community Catalyst
CT - Coalition for UHC
CT - UHC Foundation
Divided We Fail - AARP
Everybody In Nobody Out
Fact Check
Families USA
FL - Floridians for Health Security
Foundation for Health Coverage Education
GA - Common Sense Health Plan
H.R.676 - "Medicare for All"
Health Finder (HHS-ODPHP)
Health Law Advocates, Inc.
Healthcare-Now!
IL - Health Care Justice Campaign
Insure Kids Now
MA - Campaign for Single Payer HC
Maine People Alliance
MD - Health Care for All
Medicare for All
MN - Citizens Organized Acting Together
MN - UHC Coalition
National Council on Patient Information and Education
National Health Council
NC - Health Care for All
NY - PNHP Metro Chapter
OH - Single Payer Action Network
OH - UHC Action Network
OR - Archimedes Movement
OR - Health Care for All
Physicians for a National Health Program
Prescription Access Litigation
Progressive Democrats of America
Protect Your Health Care
Protest Health Care
Right to Health Care
SEIU Healthcare Union
The Sicko Cure
TX - Health Care for All
Universal Health Care Action Network
UT - Quality Coverage for All
VT - Health Care for All
WA - Health Care for All
We Be Illin'
WI - Coalition for Wisconsin Health

toggle(getObject('exp1199237282_link'), 'exp1199237282');
Recent Comments
I love how you pulled all this together! Thank yo... - Karen Dianne Lee
Cool gadget! I'm always looking for things to make... - Miss Chris
It might be the ol' MS poopy-brain but I have no i... - Yoda Mamma
When I was in Junior High and High school, I playe... - Jim
That is added to my shopping list for the future. ... - Jim



Blog Archive
▼ 2008 (67)
▼ March 2008 (16)
Quilting Bloggers Spread MS Awareness
Stuff that makes life easier....or not.
Everything's Fine by Sid Schwab
Music Antics
Random Thoughts - How a few simple words can break...
Carnival of MS Bloggers #6 - A Country of Our Own
Warning: Steroid-induced Annoyance Ahead
Is Diet the Answer to Treating MS Symptoms?
Drink Up, Drug Up, Read Up
You Less-than-three My Blog, You Really Less-than-...
MS Awareness, Blogging Friends, and a little Link ...
Big Insurance Company vs. Mild-Mannered Insurance ...
Joining the MS Party
A Multiplicity of MiS-Simplification
Stuff that makes life easier....or not.
What difference does $165,776,833 make?
► February 2008 (27)
Letter from Mother of MS Patient
Carnival of MS Bloggers #5
Federal Money for Multiple Sclerosis Research
PR for MS - Ogilvy and Betaseron
Who is your Hero?
Stuff that makes life easier....or not.
In Honor of the Academy Awards - Oscar Night for S...
MS Carnival #5 - Submissions Due
Who Needs to Know?
Gooz News hosts the Health Wonk Review
Yippee! Yay! Go Federal Trade Commission!!
I must...I must...BLOG!!!
SCHIP in the News AGAIN!!
MS Forums Online - Where do you go to talk?
Carnival of MS Bloggers #4 - Valentine's Special
Annoying mysteries of life from a frustrated blogg...
Sharing Grace in the Face of Illness
Clear Communication is Key!!
Fear and Anxiety - What are your dreams?
MS Carnival #4 - Submissions Due
Health Wonk Review is Hosted at the Health Busines...
Who do you tell, when do you tell, and why do you ...
Joshua means "Yahweh (God) rescues"
Blogroll Amnesty Day
Preparing for Your Doctor's Visit
Depression and Drugs - What do you take?
Get your Carnival Button here!!
► January 2008 (24)
Billy Tauzin to be honored at Montel Williams MS F...
Carnival of MS Bloggers #3
Love, Depression, and Loneliness
As the World Passes By...
MS Carnival #3 - Submissions Due
Why My Blog?!!
Invisible Challenges
► 2007 (64)
► December 2007 (21)
► November 2007 (14)
► October 2007 (15)
► September 2007 (9)
► August 2007 (5)

Labels
ADA (3)
Advocacy (1)
AHIP (2)
Alt-Med (2)
Anxiety (2)
Biogen (1)
Biotech Drugs (1)
Blogging (14)
Bogus (3)
Carnival of MS Bloggers (8)
Cavalcade of Risk (4)
Cephalon (2)
Congress (5)
Copaxone (1)
Depression (3)
Diagnosis (2)
Doctor Visit (3)
Dr. Eric Berg (2)
Drug Marketing (7)
Election 2008 (3)
Fatigue (2)
FDA (2)
Fears (1)
Forums (1)
Genetics (1)
Health Policy - Government (8)
Health Policy - Insurance (9)
Health Policy - Pharmaceuticals (7)
Health Policy - Universal (6)
Health Wonk Review (6)
Hugh Downs (1)
Humor (5)
Innovation (2)
Inspiration (9)
Just For Fun (12)
Loss (2)
Love (3)
MedLink (1)
Mental Health (1)
Money (13)
Montel Williams (3)
Multiple Sclerosis (21)
Music (4)
NARCOMS (1)
News (6)
Nutrition (3)
Ogilvy (1)
Patient Care (7)
Pfizer (1)
PhRMA/Pharma (16)
PPArx (7)
Public Relations (2)
Questcor-Acthar (5)
Relapse (1)
Research (9)
Richard Cohen (1)
Rx Outreach (1)
SCHIP (3)
SiCKO (1)
Simple Life (3)
Solumedrol (1)
Teva (3)

MEMBER

Perspective
Confidentiality
Disclosure
Reliability
Courtesy





65

_uacct = "UA-2919780-1";
urchinTracker();